What if the meaning of words could truly reflect the experience of someone living with hemophilia?

Emofilia dalla A alla Z (Hemophilia from A to Z) is a project designed to shed light on the realities of living with this rare disease through the power of language and its own specific vocabulary. By collaborating with Fedemo, we’ve created a playful and approachable identity that speaks to both adults and young people alike.

Aiming to facilitate open dialogue between experts and patients we promote this projects through a series of engaging webinars. We believe that by sharing experiences and insights, we can create a new redefined language of disease that truly reflects the perspectives of those living with hemophilia.